Brian Mckoy's Motivation and Inspiration Station: WHEN YOU KNOW WHAT YOU KNOW!

I remember when we were in Morgan Stanley Children's hospital with my daughter. She had been hospitalized for about 10 or 11 months at this point. So after months and months of not being able to arrive at a diagnosis, the doctors decide to try to tell us that she has something called GM1 Gangliosidosis. (Scary stuff) I googled it and my heart dropped as I read about the disorder and the symptoms and the prognosis. I'm heartbroken, but as I continued to read the symptoms, I'm like she doesn't have this, she doesn't have this at all! So we schedule an appointment with the neurologists to discuss the diagnosis and I tell them she doesn't have what your saying she has! They say to us, "I know how hard this must be for you" they told me that I was just in denial. I told them that I watched my daughter have seizure after seizure day in and day out and be hospitalized for months at a time. I told them that I'm not in denial, I know something is wrong. But it's not what you are saying it is. Please, go back and try again. I did extensive research and she doesn't have this. I asked, what about this symptom and this symptom, why doesn't she have these symptoms. They basically laughed at me and said, in a condescending tone "your Internet research doesn't equate to our years of expertise". I said this disease occurs in 1 out of 1 to 200,000. Have any of you ever seen a case of this in real life? They said no. I said so you can hardly consider yourselves "experts". They wouldn't listen to me. They told me to accept it. They actually told me to let her die in peace. She has this disease and that's that. We went back and forth. I would not let up. I fought tooth and nail with these "experts" because I KNEW WHAT I KNEW!

I proceeded to contact every single doctor in the U.S.A who knew anything at all about GM1 Gangliosidosis. I eventually reached the top GM1 researcher in the country. He happened to be right around the corner at NYU. I contacted him and he says everything your telling me sounds like she doesn't have GM1. He told me to have my daughters doctors send over all of my daughters info to him and he will review it and run his own tests.

2 weeks later, I get an email and a call from the specialist at NYU. And What do you know, she doesn't have what the "experts" tried to convince me that she has! They eventually came back to me and said uh were sorry. I guess it's back to the drawing board. SHE DOES NOT HAVE GM1 Gangliosidosis.

It made me think, this was a perfect example of why we HAVE TO LISTEN TO OURSELVES! "EXPERTS" don't always know EVERYTHING! After you have searched your soul and done all of your research and examined all of the relevant evIdence and YOU KNOW WHAT YOU KNOW, DON'T LET ANYONE, NO "EXPERT" OR ANYONE sway you from what YOU KNOW. If you have that feeling and heard that calling and you KNOW that you are supposed to write that book, DONT LET ANYONE talk you out of it write it! If you KNOW you should start that business, START IT! Go back to school, take that test, pursue those dreams, Sing that song, start that clothing line, paint that picture, reach out to mend that damaged relationship etc.

I have learned that WHEN YOU KNOW WHAT YOU KNOW, DON'T LET ANYONE TELL YOU ANY DIFFERENT!

DON'T LET ANYONE TALK YOU INTO GIVING UP OR TALK YOU OUT OF YOUR GREATNESS!

YOU ARE THE EXPERT ON YOU!

PEACE!